Monthly Archive for January, 2010

One Last Day

Layla is pretty well ready to leave the hospital – that’s my unprofessional opinion. Today she was excited, rambunctious, playful, laughing – everything you’d expect a happy, healthy two year old to be. In any other setting, it’d be normal. In the hospital, not so much. I feel like a kid waiting for Christmas — just 2 more sleeps, 1 more day. But who’s counting?

All Good Things…

The planned discharge day of Sunday was moved back to at least Monday. The doctor is being extra cautious with Layla – she continues to cough (a couple times a day) despite the medicine, so the doctor doesn’t want to take any chances of her having any kind of relapse. I guess I should appreciate the doctor’s extra care but I can’t help but feel she’s been overly cautious. For the last few days, Layla has been very energetic, playful, cheerful, etc. I understand there’s still a bit of a rattle in her chest and the ever-present cough, but I’m confident Layla’s body can fight off whatever it is that’s left over in her system. She’s had worse without even a trip to the doctor, let alone a stay in the hospital. On the flipside, I guess it’s better to be have an extra day of caution than to release her early and have another week in the hospital because she has another attack… regardless, it sucks to hear the doctor tell you it’s going to be even longer than anticipated…. originally it was only supposed to be a week-long stay. They say all good things come to those who wait – I feel like the amount of time we’ve waited, we deserve the best thing… and, all things going well, Monday we will get the best thing, and her name is Layla.

The Soul Would Have No Rainbow Had The Eyes No Tears.

Crying. Babies do it for a variety of reasons, be they in need of food, nurturing, diaper changing, or something else. They do it a lot and they do it loudly. A group of babies can sometimes comfort each other or they can feed off each others’ tears. You’ll never guess what happened today.

It was my turn to spend the majority of the day at the hospital and I did just that. I showed up just after Layla finished eating and she was sitting alone at a small table on the floor playing with her cup. As soon as I entered, the room went silent. 7 pairs of tiny eyes were trained on me like snipers watching an inbound target. I knew some of the kids but, as usual, a few new ones were there and a few old ones left. You know we’ve been there too long when we’ve seen a full rotation of kids go through the room.

The silence didn’t last long as I chatted with Layla a bit before another kid chimed in. She was quite happy to continue talking to me even after I replied in English. I didn’t understand a word she said, but nodded and smiled at the pauses – that seemed to be enough to satisfy the kid.

Layla’s student nurse showed up at one point, not long after I arrived. She was eager to play again and Layla was less than eager to oblige. I felt a little bit bad for the poor student as I know she was trying her best to get Layla to play, but I’m happy to say she just wanted to be spend time with her old man. Of course the student’s immediate appraisal of the situation was that Layla must be tired. It’s actually a common conclusion that many nurses have made over the last two weeks – I think they must think Layla has narcolepsy or something.

Over the last two weeks, Layla has had several students poking and prodding her, checking her temperature and pulse several times a day. I don’t think a stethoscope is that hard to use, but the students practiced it so many times I’m beginning to think there’s something I’m missing. Today, when the student came to play with Layla she had just pooped. I tried to explain that she wanted her diaper changed, Layla tried to explain it, I got a diaper and wipers from the desk but the student ignored me and still wanted to play. Maybe she gets marks for effort or something. Well, as annoying as she was, I think she’ll be getting bonus points for today – after I laid Layla on the bed I tossed the diaper to the student and said “Good study lesson, eh?” and asked if she wanted to change the diaper. Layla cried in fear and the shock on the student’s masked face was priceless. She closed the curtain around the bed and asked me how to open the diaper. I helped, ripping the diaper and holding Layla while the student got her hands dirty cleaning up, using 10-12 wipers in the process. After we were done, she thanked me for giving her the opportunity… if I’d only known two weeks ago what I know now.

I got in trouble from one nurse today because I unplugged Layla’s battery-powered IV machine so she could play with one of the kids she’s grown attached to. I know I’m not a doctor or nurse, but I think it’s a healthy thing for the kids to interact and play with each other… instead, the nurse told them they can only talk from across the room, insisting I return Layla to her bed and re-plug in the machine. Even after I pointed out that there was an empty socket on the wall beside her friend’s bed, she refused. It might have been a language thing, I’m not sure. That’s the reason I’d have given if she saw me some time after she left when I re-unplugged Layla’s machine and let them play. =)

One of the recurring things I see every day in the hospital is kids crying for their moms to come and visit them. One of the (many) things that I disagree with is the nurses totally ignoring them, for tens of minutes. Today there was at least two kids crying in the room of seven at almost all times. Being the only parent there for the first couple hours, I did my best to calm them down but it was a losing battle. A couple nurses came in once or twice and calmed one or two of them down, but that was the exception and is far from the rule. I understand they have rounds to do, medicine to give, etc, but there are a lot of nurses there and I know the other rooms are virtually empty. You would think (hope) that since they banned most everyone from visiting that they’d at least put a little extra effort into taking care of the kids… at least, I would hope so.

Tamie showed up around 18:00 today, just after Layla started eating. As soon as Tamie got settled, I bolted. I wanted to give them the opportunity to spend some time together… and I wanted to get out of the insanity for a bit.

I got back about an hour later and there were a couple more parents there. One poor dad was holding his baby son, both sweating profusely. The kid wouldn’t stop crying no matter what the dad did. Been there, done that. Layla, ever the saint, wanted to go try to play with the crying kid so we all went over to see. Nothing we did seemed to help and the kid continued to bawl. It wasn’t until nearly the end that we found a toy that the kid liked, and he started playing and laughing. Finally, there was a peace in the room, as every kid had a parent, a toy, or both to keep them busy. Phew.

When the lights went out, I laid down on the bed with Layla. For whatever reason, she seems to get more energy nowadays at the end of the day than in the middle of it. I take it as a good sign that she’s got more energy. I tried to get her to sleep, and she tried hard. She squeezed her eyes shut, she tossed and turn trying to get comfortable, she squeezed her miffy hard, but alas… she kept finding something to laugh about. Just before 21:00, I traded spots with Tamie so she could lay with Layla for a while since it was obvious she wasn’t going to fall asleep. When the nurse came, Tamie got up and Layla popped up like a jack-in-the box. She hopped around on her bed, saying good night to us and reminding me not to forget my umbrella. As we left, she finally laid down, hopefully to sleep.

Layla is certainly much better than the last two weeks, wanting to play and run around. Unfortunately, the planned removal of the IV tomorrow has been postponed because the poor kid keeps coughing and the doctor is being extra cautious. Hopefully it doesn’t affect the planned Sunday release. I don’t know if I could stand another day in that place, even if Layla is adjusting.

Step By Step

I was planning on being in the office by 7am to allow for an early departure so that I might spend some time at the hospital with Layla. Unfortunately, that was not to be…

I woke up this morning with a kick in the back as Tamie did her best to shake me from what I can only imagine was a delightful dream. The 5am alarm that I so meticulously set the night before somehow didn’t go off, and the 7am angry wife had to suffice. It more than did the job.

I ended up at the office just before 9am, but surprisingly still the first one in. A full day’s work was done, in fact it came down to the wire on the last task I was working on. I left at 16:15, hopeful that the work I just finished was done correctly but torn between wishing I had more time to check it and wishing I’d left an hour earlier to get to the hospital. As it was, I still made it a few minutes before 18:00.

When I got to the hospital, I was shocked to find another kid in Layla’s bed. She’d been shifted one bed over, for not other reason than the fact that the room was packed. 8 beds, 8 kids in various states, between hysterically crying for their parents to quietly playing to sleeping. Fun times, indeed. Layla was sitting on Tamie, clutching her like she was trying to fall asleep… turns out she was just starving.

Dinner eventually came and Layla scarfed down her rice and soup. I helped as best I could, but she was so eager to eat that silly things like using a spoon properly wasn’t going to stop her from getting the food into her mouth. She managed to feed herself, and the table and the bed, with little problem.

Thankfully, her energy is up as much as her spirits seem to be – she wanted to play for almost the entire time I was there. The only time she didn’t was when she got made at me for having to hold her and give her medicine instead of letting her play longer.

Layla’s bad mood didn’t last long though — one of the other inmates that Layla has taken a liking to, a young guy (one month Layla’s junior) named yuma-kun, was sitting watching tv and falling asleep. His head was bobbing but he was doing a good job of catching himself before he fell over. No one else seemed to notice (or care) so Tamie eventually went over to see if he wanted to sleep. Instead, he wanted to play and I reorganized a few machines to give Layla enough slack on her leashes so she could reach too. We played with the kid for a good 45 minutes before lights out and everyone had to go to bed.

By 21:00, Layla was still full of energy. Tamie had laid down with her to try to get her to sleep but even after an hour of trying Layla was still wide awake. At one point they were whispering and giggling together like school girls – it was so cute. When the nurse finally came to say visiting hours were done, Layla didn’t cry, accepting it like the hospital veteran she is.

Layla is still coughing a bit today, but overall is definitely much better than she was a week (or even two days) ago. After talking to the doctor, the prognosis is definitely good and it seems like Sunday is the discharge day, given all things progress as expected. I am so looking forward to the day we take her home. Not as much as she is, I’m sure, but things are so much better when she’s around.

Tomorrow is my day alone at the hospital while Tamie goes to work. Here’s hoping it’s my last.

Stale Air Never Smelled So Good, I’m Sure

Today was my day to visit Layla at the hospital. Tamie got up and left early for work, and I got up and worked a couple hours remotely before heading to the hospital. In both cases, I’m sure we’d both rather get up at an almost reasonable hour, fight with Layla to wake up, eat her breakfast, get dressed and go to daycare. Ask me again in a week…

I got the hospital just as Layla was finishing her lunch. Two things struck me when I came in. Firstly, she was sitting at a small table with a fellow inmate, a girl a bit older than Layla who had been there a couple days already. Second, she was free of one of the leashes that kept her stuck to her bed. The tube feeding her oxygen was no longer wrapped around her head poking into her nose. I am sure the moment they took that leash off she savoured the sweet, non-oxygen-enriched smell of the dank air in the hospital.

Layla seemed pretty happy, eating everything that was in front of her but the poor other kid just sat and stared at us. A nurse tried to get her to eat, but she refused. As I helped Layla eat, I tried to get her to eat too but she just stared blankly at me. I guess hunger finally convinced her to eat because eventually she started wolfing down everything on her tray. Bedside manner at its finest.

After lunch, Layla wanted to colour so I got her markers and her colouring book out of the desk beside the bed. She took them over to the small table, where the fellow inmate was also preparing to do some drawing. I was happy to see that, finally, Layla had someone closer to her age to interact with. I wish I could say they got along well, but at least they were social to each other. They shared crayons, markers and paper but beyond that it was every inmate for themselves.

While the colouring was going on, the new batch of co-op students showed up. Tamie had signed a permission form allowing said students to use Layla as a training ground for their future careers. I thought that was odd seeing as the last batch didn’t require any kind of permission… they just kind of showed up one day. In either case, it got a bit awkward to say the least… read on…

Layla isn’t what I’d call the most outgoing kid in the world. She gets along with people she knows, but strangers take some time before she’ll warm up to them. Crowds of strangers just seem to make her retreat into a shell that she won’t come out of. I know exactly how she feels as I grew up feeling the same way. With that in mind, a crowd of student nurses was the perfect catalyst for one of the most ridiculously awkward situations I’ve been in in a long time.

I was busy playing with and entertaining the two girls alone before everyone showed up. Everyone was having fun – even the baby in the cage was sitting and watching, his feet hanging through the bars, laughing as he watched. Eventually the nurses showed up, one at a time, to check on the kids. After the first nurse, they continued playing. The second drew some concern, but colouring continued and fun was still had. The third, fourth and fifth nurses… fellow inmate was still okay, but Layla was nearly frozen…

The students’ hearts are definitely in the right place – they are trying to learn and also to entertain and befriend the kids they are assigned to. Layla would have none of it though, seeing the crowd of people staring at her instead of seeing the one nurse who was actually trying to play with her. I did my best to encourage her but she was determined to climb on my lap and wait until everyone left. So I held her and everyone told me she was too tired. There hearts might be in the right place but there heads certainly weren’t – she wasn’t tired so much as she was nervous of everyone around.

One thing that annoyed me, which Tamie later pointed out was maybe okay, was the fact that in the room of six kids, four nurses decided to crowd around my daughter and the inmate she was playing with. I was there watching them and keeping them entertained and the nurses decided that those two kids were the ones that deserved their attention, the four other kids in the room be damned. Later, Tamie pointed out that the students (3 of the 4 nurses) were most likely assigned certain kids that they could interact with and they weren’t allowed to play with the others. Not really a good reason, but a reason nonetheless.

Layla eventually fell asleep in my arms, so we sat on the bed where I read a book while she sawed logs. I’m almost done the book but it seems like every time I get to a good point, Layla wakes up or needs my attention. The last 50 pages are always the hardest, eh?

After she woke up, she refused to move from my chest. I ended up convincing her to get up by asking if she wanted to take a walk. Her nose leash was gone and I knew the IV had a battery from previous experience, so after she put her sandals on I took her out and about for the first time in a long time. She nearly ran out of the room she was so excited. We went to the playroom and she brought back some toys to her bed.

Unfortunately, the toys we took back were not actually the toys she wanted to play with. After returning to the bed, Layla saw the fellow inmate was playing happily with her mom with some building blocks on the little table. Layla, ever the leader, decided she too wanted to play with building blocks on the little table. So, for a while, there was peace – no nurses, a mom and daughter playing with a father and daughter with a small language barrier but still having fun.

And then she showed up. The nurse in the pink apron. The nurse who’s sole duty is to make every baby she interacts with cry out in pain and try to squirm away from her. Yep. The nurse responsible for happily sticking the 6″+ vacuum tube up each babies’ nose, such up any phlegm, mucus or blood that might exist in there. Layla cried at the very sight of her. The actual vacuuming was almost unbearable to listen to… but I know she’s a veteran because 15 seconds after it was done she was silent. The only thing was she was once again stuck to me. I ended up coaxing her down, but only after a baby showed up that she wanted to play with.

Tamie showed up around 17:30, giving me some time to take a break and get a much-needed snack. She stayed with Layla when I took my leave at 18:00, just after Layla got her lunch. When I got back, Tamie informed me that they’d had a HUGE fight. Layla was, apparently, asking for me the whole time… Yep – it felt even better than you could imagine.

Unfortunately, despite Layla’s cries she was quite happy to be with her mom after I returned. I knew she missed her mom so didn’t make too big of a fuss about it… at least, not until tomorrow when she continues to ignore me =).

At 20:00, the lights went out and by 21:00, the visiting hours ended. By 21:10, the nurses were trying to kick us out. We left Layla who didn’t make a peep after we told her we had to bail. She understood and accepted it, not like one of the new kids who cried past 21:00. Tomorrow is another day, another day I look forward to seeing Layla’s progress. Another couple days and we’ll be home again… TIme might fly when you’re having fun but it certainly crawls to a stop when you aren’t.